Monday, June 6
Anthony is sick. Chemo is on hold now, because he is too sick for
them to give it to him. The doctor said today that she is "knocking him down now"....She said that it is absolutely spectacular
how really well he has tolerated treatment up to this point, but now he is knocked down. His throat is messed up, he
is very weak, and has a bad case of bronchitis. He has now officially been put on the feedings through his feeding tube 6
times a day, because of the continued weight loss. He only weighs 109 pounds now. They are going to give him medicine
through his port every day this week when he goes in for the radiation, and hopefully he will be built back up and feeling
better by next week. Please keep him in your prayers.
Wednesday, June 1
Anthony is not feeling well today at all. He had a very bad case of hiccups
today and was not able to get his radiation, since he has to be completely still to get the radiation, and could not hold
his head still. He has not felt good all day today. His taste is almost completely gone, and his throat is bothering him a
lot more now.
Friday, May 20
We are about to head out to the cancer center for his radiation. He is really
trying to keep his spirits up, and he does have a wonderful positive attitude through all of this, but in reality, he is very
tired and the affects of the radiation and chemo are getting tougher on his little body. He is beginning to have the mouth
and throat problems that the doctors told us he would, and his taste is becoming really affected. Please keep him in your
Anthony's throat is beginning to mess up now, just like the doctor said it would do. It hasn't gotten real bad yet.
He can still talk, swallow (so far), and taste, although everything is tasting the same to him now. He says his throat is
"very tight", so I fear the swallowing will be leaving soon. The doctor gave him some medicine to try to help the mouth
and throat as much as possible. The radiation and chemo is making him very tired and he sleeps a lot now, but he is still
in great spirits and when he is not sleeping, throwing up, or in pain, he still wants to fish.
Thursday, May 5
Well, Anthony's neck is swelling back up. We showed it to the radiation oncologist
today, and he said, "well, I'll have to make it go back down". So, we go back again tomorrow for more radiation. If
it is still swelling out more Monday when we go back for chemo, we will see what Dr Rossman says.
the car that we saved dollar bills and silver change to buy so that we would have transportation to get him to radiation every
day for the next several weeks is still sitting out front and will not start, after only running ONE day. So we are
very disappointed about that. We have already spent around a hundred dollars trying to get it fixed, and we are now
out of money and still don't have transportation. Oh well.... no good complaining and whining... just if you will, pray that
it will work out some how.
Tuesday, May 3
Today was day two of radiation. Anthony says his neck feels very warm inside
and has been very tired and sleepy.
He actually had gained a pound this week, instead of losing.
Yesterday, when we got to the cancer center, he weighed 112.6 pounds.
We go back to radiation tomorrow
at 11:30. Please keep him in your prayers.
Monday, April 25
Well, Anthony's white blood cells came back up.... now they are high! He has
lost another pound this week. He is now down to 111. Doc told him to "eat like a horse this week", because he is starting
radiation Monday. For the next 7 weeks or so he will be having chemo every Monday, and radiation every Monday through Friday.
We are so not looking forward to this, so please keep him in constant prayer.
This week he is going
to eat a lot and fish a lot (on days the weather permits), and try to at least not lose any more weight. Doctor still says
that the radiation is going to take away his ability to swallow and that he is going to have a very sore mouth and most likely
be very tired. On a lighter note, the chemo has shrunk the cancer enough that she now feels that he will not lose hearing
or sight from the radiation.
Monday, April 18
Well, we went to the cancer center today and Anthony's numbers are really down.
His white blood count is low/critical (2.3), red blood count low, hemoglobin low, granulocytes low, everything else was normal.
They gave him a shot to build him back up, and he gets a break until his numbers come back up. The radiation oncologist said
that he can't touch him with his numbers that low. So, we go back Monday for labs again to see if the shot has helped.
also talked to the doctors about his terrible leg cramps that he has been having over the past few days and they told him
to eat lots of bananas, drink ovaltine and orange juice.
Please keep him in your prayers.
Wednesday, April 13
Well, we are in to day 3 of this round of chemo, and Anthony isn't feeling
so well. He is back to sleeping most of the time, and not feeling very good at all when he does wake up for a bit. He told
me earlier that his hair "hurt", and then realized it has begun coming out. When he reached to touch his head, hair came out
in his hand. I think that bothered him more than he thought it was going to. Obviously, we had both already been told that
this was going to happen, but since it didn't come out with the first round, I think maybe he was hoping it wasn't going to.
But he is a beautiful, beautiful young man, and if he doesn't have a hair on his head, he will still be a very beautiful and
handsome young man, and I really don't want him to become too depressed over this.
I said, he isn't feeling as well as he has been. He is mostly just sleeping all the time again, like he did with the first
round of chemo. He (thank God) has not yet starting vomiting and being so sick to his stomach this time. I keep hoping that
since we actually were able to start his nausea meds this time immediately instead of having to fight with a dang pharmacist,
and not get them till a day later, that has helped with the nausea part. He was able to eat some supper last night, but has
not yet eaten anything today.
Please keep him in your prayers, as we have two more days to go with
this round of chemo. Then he will get another break for a couple of weeks before the chemo/radiation starts.
Monday, April 11
Well, we are up and getting ready to head out for the next round of chemo.
Neither one of us is looking forward to this at all, but it must be done.
Anthony has totally
enjoyed this past week of freedom and fishing and relaxation. He is so hoping that this round of chemo doesn't knock him down
as bad as the last round did. Please keep him in your prayers, and I will update again tonight or tomorrow.
Thursday, April 7
Not much new to tell right now.... Anthony has really been enjoying his break
from chemo, and having a few days to get out and fish and relax at the lake.
Please keep him
in your prayers as he has to go back this coming Monday for the next round of chemo.
Monday, April 4
Anthony has not seemed to be feeling as well today as he has been. That kinda
worries me, but I reckon he is okay. He had labs today and the nurse told him that his numbers were still good. But he has
just been really tired and droggy today, more so than the past few days.
Sunday, April 3
Sorry I haven't updated this weekend, but Anthony and I decided that while he
has a break from chemo and is feeling pretty good, we would just go fishing! So that is what we have done for the past two
days in a row. We both love fishing very much and haven't been able to go in a couple of years or longer, so we just took
off. We didn't catch a lot of fish, but we had a lot of fun and it is very relaxing sitting at the lake.
go to the cancer center for labs in the morning and then back next Monday for the next round of chemo, so please continue
to keep him in your prayers.
Friday, April 1
Other than just the normal stress of the first day of the month, (figuring
out bills, and how much we can give to each one LOL), this has been a pretty nice day.
Anthony an appointment for next Tuesday at the doctor's office for them to look at his feeding tube and make sure everything
is good with that.
He is feeling pretty good today, other than being tired from all the running
Please just continue to keep him in your prayers. We are really hoping for a lot more
of these good days between now and April 11th when he has to start the next round of chemo. He is not looking forward to that.
Thursday, March 31
Well, we got a call today from the cancer center, telling us that they had
made a mistake on Anthony's appointments. Turns out that he will not be going for chemo Monday after all. They made that appointment
a week too early. He will only go in for labs Monday morning, and then back the following Monday, April 11th for the next
round of chemo. I am very thankful that they caught their mistake, because he and I would have been none the wiser,
and I am afraid to think of what it could have done to his body if they had given him the chemo a week too soon!
he is feeling okay today, and especially since we got that phone call. He is really happy about having another whole week
off from the chemo.
He is still having some discomfort in his stomach where the feeding tube
is. I called the doctor's office today and they didn't seem to think it was anything to worry about, but of course told me,
'if you are uncomfortable about it, we can make him an appointment to come in". So we are gonna see how he is feeling
Wednesday, March 30
Today has been another pretty good day. Anthony hasn't really felt bad,
other than having some pain in his stomach. He and I got out of the house for a little while this morning. He had a
couple of visitors this afternoon.
Hoping for more good days the rest of this week, and then
we have to go back to the cancer center Monday to begin round 2 of chemo. Please continue to keep him in your prayers, and
I will update again later on or tomorrow.
Tuesday, March 29
Anthony hasn't felt as well today. He has been having some pain in his stomach,
and also more pain in his head and neck. I guess there are just gonna be good days and bad days, and this one isn't
exactly a bad day, but just a "not so good one". He is still up walking around and things, just not feeling so well.
a couple of visitors today; one friend wanting to take him fishing, but he didn't feel like going, and another stopped by
to pray with him.
Monday, March 28
This has been a real good day, so far. We went to the cancer center for labs,
and Anthony's numbers are all still in the good range. He has been feeling a lot better today than yesterday. He actually
was able to get out at Walmart and go in and bought himself a new shirt and wallet that he was in bad need of, and we stopped
by the Marion County Lake and he got out and visited with Mickey for a few minutes before we went on to the cancer center.
has eaten good today, and kept it down, so that is a big plus for him. I hope he continues to feel better this week,
since Monday will start another round of chemo. After that round, he will get another break for about 10 days, and then go
back for both chemo and radiation. I am really hoping to be able to take him fishing before that starts.
Sunday, March 27
Today has been a pretty good day for Anthony so far. Just a little stomach
problem, but nothing we can't handle with plenty of fluids.
He has actually been up and walking around most
of the day today. Even went with me to Walmart for a few minutes to get bandage supplies and cat food. We stopped back by
taco bell and grabbed a few tacos and he was able to eat one taco and so far it is still down. He said his stomach "feels
a little wierd", but no vomiting so far.
He is back in bed resting now, but all in all, this
has been a pretty good day. I hope he has some really good days while he is on the break from chemo for the next week or so.
Saturday, March 26
In Anthony's words, "this is just a groggy, yucky feeling day
so far." He just doesn't feel very good today at all.
Hoping he will feel better later
on. I will probably update again later on today or tonight, depending on how he does through the day. Right now, he is going
back to sleep for a while.
Friday, March 25
We went to the cancer center at 12:30 today for them to unhook Anthony's
chemo pump, so now he gets a break for two weeks. We go back Monday for labs, but no more chemo until April 4th. I hope he
perks up a lot while he is getting this break. The first round of chemo really knocked him down a lot more than we thought
it would. But he has actually been up walking around quite a bit this afternoon, and ate good, and we even went and visited
with my brother and sister-n-law for a little while this afternoon and he made it just fine. I was so proud to see him able
to walk around and enjoy himself for a little while today, for the first time since Monday!
guy from Lincare Infusion came today and delivered a month's supply of formula and syringes for the feeding tube.
Thursday, March 24
Anthony is still sleeping most of the time. The chemo has really
knocked him down a lot faster than we really thought it would. But he is resting comfortably, so I guess that is a blessing
We did go to the cancer center this morning and let them hook him up to some fluids,
steroids, and nausea med, because of the fever scare and the bad night last night. I believe that helped him, because he actually
came home and ate a banana and drank most of a cold drink and has kept it down so far.
We are so
thankful to have such a wonderful support team at the cancer center. Those doctors and nurses are absolutely WONDERFUL to
him, and that to me is part of the battle right there. If you have doctors or nurses that have a bad attitude, it just
seems to make you feel even worse than you already did to begin with. Anthony is so very blessed with the doctors that
are caring for him. He really loves them, and they treat him with kindness and much compassion.
were finally able to get most of his medicines. There are a couple of things that medicaid supposedly won't pay for that we
will check in to later on and try to find a way to get them, but he got the biggest part today. And he has been approved for
a year's worth of all his feeding tube supplies and formula, so we will receive some of that tomorrow. They will deliver that
to our front door, and I am thankful for that.
We go back to the cancer center tomorrow at
12:30 just long enough for them to unhook his chemo pump and then he gets a two week break from the chemo.
Wednesday, March 23
Anthony is not feeling well this evening. He got out of the house
today and rode with my sister, my niece, and I to Walmart for just a few minutes, and didn't even get out of the truck, and
it was still too much for him, I reckon. We weren't in there 15 minutes, and yet when we came out he was weak and very tired,
so we came straight home and let him get back in bed, and he just immediately fell asleep.
woke him at 4 to take his meds and he again just fell right back asleep. It tears me apart to see him this weak and sick!
I guess it is from the chemo.
I really hope that he will feel like waking up and eating some
little something later on.
We are still going around in circles with the pharmacy and the home infusion
supplier, and medicaid, but hopefully it will be resolved by tomorrow. I talked with medicaid for the THIRD time today a little
while ago and the lady assured me that everything would be updated by tomorrow and that he would definitely be able to get
the rest of his prescriptions filled then. I hope she is right. This day has been completely frustrating and nerve wrecking.
Tuesday, March 22
Well, we were hoping that he had a few days before the chemo starting
making him sick, but that does not appear to be the case. He woke up very nauseated this morning.
am having a WHALE of a time trying to get his medicines, because medicaid still has not kicked in yet, so that is not making
things any easier. But I was at least able to get some assistance this morning to get one of his nausea meds filled. Thank
God for that much!! And thanks to a very sweet friend sending him 25 dollars in the mail this morning, we were able
to use that to get part of his pain med filled. The rest will just simply have to wait until medicaid decides to get off their
butts. It is so completely frustrating to see your child (and yes I know... he is 20...but he is still MY baby boy!!!) lying
in a bed too sick to even talk on the phone, much less get up and do anything! I know in my mind that I am doing everything
that I can do, but I still feel so helpless!!
Anyway, I will update more later on. Just please keep
Monday, March 21
It was a VERY LONG day today. We got to the cancer center at 9:15
and they hooked Anthony up to fluids while we waited to see the doctor. In a few minutes we did see her and she told us that
the pet scan results were better than they were expecting. The cancer is stage 3, and is farther back from the nose than what
we had been told this whole time (I kinda think God backed it up!), and has only spread into the right side of the neck. It
has not spread into the left side, nor to any other parts of his body, as they were fearing. So that made the doctors very
excited and hopeful now about getting him through this!!
As soon as the bag of fluids ran through
him, they hung the first bag of chemo (I can't remember the name of it), and after it ran, they hung the bag of cisplatin.
After that one, more fluids, and after the fluids they hooked up his pump with the 5fu that will pump in to him 24 hours a
day until we go back Friday afternoon to have the pump unhooked.
We were there ALL day today, and
apparently that is what our Mondays will be like each time we go for the chemo. But when we go back Friday to get the pump
unhooked, he will get a two week break from the chemo. We will go back Monday the 28th for labs.
Sunday, March 20
Today has been very quiet and pleasant so far. Anthony seems to
be having a very good day. He actually ate good today, for the first time in a few days. He is very quiet today, I assume
he is thinking (as I am) about having the first chemo treatment in the morning. Please just keep him in your prayers
and I will post again either later today or tomorrow after we come home.
Saturday, March 19
Today has been an 'alright' day. Anthony actually got out and
rode to Walmart for a few minutes. I think it was good for him to get out for a few minutes, even though I know it made him
Once again, let me remind you that he starts chemo Monday morning and really needs
your prayers. We love each and every one of you and we are both very thankful for your prayers and concern.
Friday, March 18
Not a lot to say today; Anthony is just not feeling well. He isn't
sick to his stomach any more or anything like that, but "just don't feel good", he says. He is still having quite a bit of
pain in his stomach from the feeding tube being put in. I guess it will just take a few days for that to ease up. I really
hope he is feeling better by tomorrow, because I would like for him to have his strength built back up and be feeling better
before he has to go Monday morning for chemo.
I am kinda wondering if part of the reason he
is feeling so bad might be from the stress and anxiety of knowing that he is about to start treatment, and not really knowing
what to expect from it. Please keep him in your constant prayers, and I will update later on or tomorrow.
Thursday, March 17
Anthony is still not feeling well today. He has had a lot of vomiting
throughout the night, and I have been on the phone with hospital last night, and the cancer center this morning. He has managed
to keep a little fluids down this morning and actually ate a banana a little while ago, which thankfully, has also stayed
down so far. He is sleeping a lot today, but that is alright. Hopefully when he wakes up, his stomach will feel better, and
he can get something to eat and drink and get his strength back. I guess yesterday was harder on him than we expected it to
be. Please say an extra prayer for him today.
We are home from the hospital now. We got there at 9 this morning and
were finally turned loose to come home around 3:30 this afternoon.
They did Anthony's pet scan this
morning. I assume we will hear from it around the first of the week. I really don't know how long it takes for that.
he came back out from the pet scan, we went up to the second floor for his surgery, to insert the port and feeding tube. That
took about an hour and he was back in his room. And the rest of the afternoon was spent in the room waiting for him to
wake up good, and waiting for lab results, nutritionist, and instructions, and all that.
Now we are
home, and we hopefully don't have to go anywhere else for the rest of this week. We were told today that he is having Chemo
Monday morning. So we have to be at the Cancer Center by 9:15 Monday morning for that, and I don't know yet how long that
will take. All I know for sure is that they told me to be sure we bring a lunch. So it sounds like we may be there for a while
I will update more later on when I know more.
March 15 Update:
Not much to say; we were at the doctor and hospital all evening making
preparations for the pet scan which will be done at 9:30 in the morning,and then afterwards they will be inserting his port
and feeding tube. So it looks like it will be another long day tomorrow. Please keep him in your prayers and we will update
again when we get back home tomorrow evening.
Tomorrow we will see the doctor at 3:00 pm, and this is the doctor that will be doing the port and feeding tube. He will not
do it tomorrow, though. All he will be doing tomorrow is explaining it all to us and scheduling it, most likely for either
Thursday or Friday.
The pet scan is scheduled for 9:30am Wednesday.
than that, there is really nothing to tell today. We will update again tomorrow night.